Appeals Committee

The Appeals Committee consists of a group of volunteers and staff who are responsible for the Institute’s fundraising events, aimed at raising the vital funds needed by the Institute to conduct its groundbreaking research. The Committee has as its core an ethos of friendraising over fundraising, because if you don’t have friends, you can’t raise funds!


Mrs Louise Di Francesco (Chair), Mrs Ann Chang, Mr Marcus Chang, Mr Alan Crouch, Mrs Barbara Ell, Mr Errol Goldberg, Professor Robert Graham, Mr Cameron Irving, Mr Alex Schuman, Sr Clare Nolan, Mrs Antoinette Ogilvie, Mr Michael Renford, Mr Robert Ryan, Ms Ariane Gallop, Mr John Shim, Ms Ruth Zukerman.

Young Appeals Committee

The Young Appeals Committee was established in 2013 to help engage younger audiences with the Institute and its work. Chaired by Mr Marcus Chang, the committee consists of a group of dedicated volunteers and staff, committed to raising funds to support research.


Mr Marcus Chang (Chair), Ms Sally Buist, Ms Keren Weiss, Mr Julian Cook, Ms Catherine Dearnley, Ms Jenna Klug, Mr Adam Buist, Mr Anthony Collins, Ms Daniela Elser, Ms Lauren Palmer, Mr Alistair Booth, Mrs Michele Parker, Mr Ashley Parker, Ms Noura Cheded, Ms Eliana De Sousa.

Finance Committee

The Finance Committee is responsible for the oversight of finances for the Board of Directors. The Committee oversees the audit of the Institute’s accounts, investment management, management remuneration, and also sets finance policy for management to follow.


Mr David Craig (Chair), Mr Matthew Grounds, Professor Bob Graham, Mr John Kean, Mr Chum Darvall, Dr Gary Weiss, Ms Janina Jancu, Mr Kiran Narsey.

Media and Communications Committee

The Media & Communications committee is responsible for the overall strategic direction of marketing and communications activities at the Institute.  The committee meets bi-monthly and seeks to bring new ideas in traditional and emerging media platforms to promote the work of the Institute.


Ms Jill Margo (Chair), Mrs Louise Di Francesco, Mr Angelos Frangopoulos, Professor Robert Graham,  Ms Janina Jancu, Ms Ariane Gallop.

Victor Chang Day Organising Committee

This committee is responsible for organising the Institute’s major annual fundraising event, the Victor Chang Day Gala Ball.


Mrs Barbara Ell (Chair), Mrs Ann Chang, Mr Ken Laing, Ms Emma Quick, Mrs Michele Parker, Mrs Diana Ritchie, Ms Ruth Zukerman, Professor Robert Graham, Ms Ariane Gallop, Ms Eliana De Sousa, Ms Jayne Baric.

Scientific Advisory Board

The Scientific Advisory Board comprises six internationally-renowned scientists, who carry out an exhaustive evaluation of the Institute’s research programs every five years, to ensure the Institute remains at the cutting edge of cardiovascular knowledge generation and continues to produce research of a world-class standard.


  • Professor Doug Hilton (Chair)–  Director Walter and Eliza Hall Institute, Australia
  • Emeritus Professor John Chalmers – Senior Director and Head, Professorial Unit, The George Institute for International Health and University of Sydney, Australia.
  • Professor Witold Filipowicz – Professor of Biochemistry, Friedrich Miescher Institute for Biomedical Research (FMI), Switzerland.
  • Professor Lily Jan – Jack and DeLoris Lange Professor of Physiology and Biophysics, University of California, USA.
  • Professor Janet Rossant – Chief of Research, The Hospital for Sick Children, Canada.
  • Professor Stephen Vatner – Chairman, Department of Cell Biology and Molecular Medicine, New Jersey Medical School, USA.

Faculty Review Committee

The Faculty Review Committee comprises eminent scientists from local research organisations who evaluate individual faculty members every five years in order to evaluate their productivity, promote the development of goals and expectations, foster and support faculty development and mentorship, and guide junior faculty in career advancement.


  • Professor John Shine (Chair) – Professor of Medicine and Professor of Molecular Biology, The University of New South Wales, Group Leader Neural Stem Cells, Garvan Institute of Medical Research.
  • Professor Peter Gunning – Head, Oncology Research Unit in the School of Medical Sciences, The University of New South Wales.
  • Professor John Rasko – Professor of Medicine, Central Clinical School, The University of Sydney and Centenary Institute of Cancer Medicine & Cell Biology.
  • Professor Phil Robinson – Head, Cell Signalling Unit, Children’s Medical Research Institute, Westmead.

Committee on Appointments and Promotions

The Committee on Appointments and Promotions meets on an ad hoc basis to evaluate potential candidates for faculty positions within the Institute.


  • Professor Robert Graham (Chair) – Executive Director, Victor Chang Cardiac Research Institute.
  • Professor Terry Campbell – Senior Associate Dean, The University of New South Wales.
  • Professor David Celermajer – Scandrett Professor of Cardiology, Central Clinical School, The University of Sydney and Heart Research Institute
  • Professor Richard Harvey – Co-Deputy Director, Victor Chang Cardiac Research Institute.
  • Professor Doug Hilton – Director, The Walter and Eliza Hall Institute
  • Professor Levon Khachigian – Centre for Vascular Research, The University of New South Wales.
  • Professor Charles Mackay – Department of Immunology, Monash University, Melbourne.
  • Professor John Mattick – Executive Director, The Garvan Institute of Medical Research
  • Professor Jamie Vandenberg – Co-Deputy Director, Victor Chang Cardiac Research Institute.
  • Ms Maria Voukenas – Human Resources Manager, Victor Chang Cardiac Research Institute.

Intellectual Property and Commercialisation Committee

The Intellectual Property and Commercialisation Committee (IPCC) is responsible for advising the Institute on its research commercialisation activities. The Institute has also appointed consultants TM Ventures to assist with linking our research to industry and forming new collaborations.


  • Professor Robert Graham (Chair) – Executive Director, Victor Chang Cardiac Research Institute.
  • Professor Roland Stocker – Head, Vascular Biology Division, Victor Chang Cardiac Research Institute
  • Dr Trevor Davies – Partner, Allens Arthur Robinson
  • Professor Joan Dawes – Senior Consultant, Pestat Ltd; and Innovation Dynamics consulting group
  • Ms Monique Nicolle – Associate, Baker & McKenzie
  • Ms Janina Jancu  – Chief Operating Officer, Victor Chang Cardiac Research Institute
  • Ms Britt Granath – Senior Policy Officer, Victor Chang Cardiac Research Institute



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Privacy Policy

1. Our privacy commitment

The Victor Chang Cardiac Research Institute respects your privacy.

We collect, store and use your personal information to help us fight heart disease. This Privacy Policy explains how we handle the personal information we collect relating to our fundraising activities – this includes marketing, events, our website, and health promotion services such as the Health Check Booth.

2. What types of personal information we collect

Personal information means information that identifies you or that could reasonably be used to identify you. The types of personal information we collect may include your name, gender, contact information, email address, credit/debit card information and if you consent to take part in our activities and events, health promotion services or to receive marketing materials from us.

3. Health information and other sensitive information

We do not collect health information or other types of sensitive information as part of our general fundraising activities or through our general web-site.

4. Using unsolicited information

Unsolicited information is information that is given to us that we haven’t asked for, from you or anyone else. If we receive this type of information, we will check whether this information is reasonably necessary for what we do. If it is, we’ll handle this information in the same way we do all personal information under privacy laws. If we don’t need it we’ll destroy or de-identify it.

5. How we collect your personal information

Where possible, we will collect your personal information directly from you. This may be in person (e.g. when you attend an event), on the telephone, or on-line.

We only collect information by lawful and fair means.

We may also obtain personal information from third parties or publicly available sources. In this case, we will take reasonable steps to contact you and ensure that you are aware of the circumstances surrounding the collection and purposes for which we collected your personal information.

6. Why we collect your personal information

We may collect your personal information for a number of purposes, including:

  • Marketing: to communicate with you about donations, our activities and fundraising events.
  • Health promotion: to provide you with services and information related to cardiovascular disease and its risk factors and research-related events and seminars.
  • Other activities: communicating with you to verify your identity, to improve and evaluate our programs and services, and to comply with relevant laws.

7. What happens if you don’t provide your information?

If you do not provide some or all of the personal information requested, we may not be able to offer you services, process your donations, or provide you with information about our events and activities.

8. Using a pseudonym or engaging with us anonymously

Anonymous donations may be made to the Victor Chang Cardiac Research Institute at any time by contacting us directly. Please note that we are unable to provide anonymous donors with receipts.

If you want to make a general enquiry or browse our web-site you can do so anonymously.

9. Website usage information and cookies

We do not use ‘cookies’ or any other methods to record information that is personally identifiable such as a visitor’s contact details, IP address, or domain name. We do use ‘cookies’ to anonymously track visits to our web pages and the documents that are downloaded in order to compile statistical information. This provides us with information about which pages are popular. If you prefer for ‘cookies’ not to be used, you can set your browser to disable them.

10. When we disclose your personal information

We may need to disclose your personal information to our agents in order to carry out our fundraising activities. This may include agencies who perform services on our behalf, such as mailing houses, printers, information technology services providers, archiving services, database services and telemarketing agencies. These services will always be provided under strict confidentiality agreements.

In rare cases, we may be required by law to disclose your information to a government or law enforcement agency (for example to investigate an allegation of credit card fraud).

11. Security of our information

We take all reasonable steps to protect the personal information we hold from misuse, interference and loss, and from unauthorised access. Electronic information is stored on secure servers that are protected in controlled facilities.

We do not use data hosting facilities or third party service providers that store information overseas.

Hard copy information is generally stored in our offices, which are secured to prevent entry by unauthorised people. Any personal information not actively being used is archived, usually for 7 years, with a third party provider of secure archiving services. Where personal information is stored with a third party, we have strict agreements in place that require those third parties to maintain the security of the information.

12. Security of direct debit and credit card information

We use a third-party financial institution to process our credit card transactions. It receives the credit card number and other personal information of our donors only to verify credit card numbers and to process credit card transactions in a secure environment. Where your financial information is stored on our servers, access to this information is restricted to our authorised staff only.

13. Accessing or changing your personal information

We take reasonable steps to make sure that the information we collect and use is accurate, up-to-date and complete. You may contact our Fund Development Officer at any time if you wish to:

  • change or correct your personal information (for example address or telephone number)
  • cancel some or all of the communications that we provide (we include opt-out mechanisms on the majority of our communications)
  • request access to the information that we hold about you
  • request further information about our privacy policy.

14. Questions and complaints

If you have any questions, concerns or complaints about the way in which we have handled your personal information, please contact our Fund Development Officer.

Once we receive a complaint, we will respond to you as soon as possible and will let you know if we need any further information from you. We will notify you of our decision within 30 days, however, if we are unable to do so, we will let you know the reason for the delay and the expected timeframe for resolving the complaint.

You may also lodge a complaint with the Office of Australian Information Commissioner, for more information visit

15. How to contact the Fund Development Officer



Victor Chang Cardiac Research Institute
PO Box 699
Darlinghurst NSW 2010

Telephone 1300 842 867

For a copy of our full privacy policy, please click here.

Updated: March 2014