Love isn't enough. Only research can find a cure
“If love was the cure, my daughter wouldn’t be so sick. Please support cardiac research to help unlock the mystery of childhood heart disease.” Tamarra Love (Mother of Chloe, born with congenital heart disease).
For the first few months of my pregnancy with Chloe, it never crossed my mind that my baby could be born with heart disease. Admittedly, I had no idea that congenital heart disease is so common, affecting 1 in every 100 babies born. But then, at my 20 week ultrasound, my husband and I were told our precious baby girl had hypoplastic right heart syndrome (HRHS) and tricuspid atresia. Words that plagued me all pregnancy, and now conditions that haunt my family.
HRHS is a very serious congenital heart disease that’s diagnosed when the right side of a baby’s heart is underdeveloped and unable to pump blood efficiently.
Like 8 out of every 10 congenital heart diseases, doctors have no idea what causes it. Only research can provide answers to these heartbreaking diagnoses.
As a mother of a child born with heart disease, I ask you to please make a generous gift today and help unlock the mystery of devastating diseases like HRHS.
Chloe is now four years of age and in her short life has already had three open heart surgeries – her first at just four weeks old and her last only a few months ago.
This most recent one has been the hardest. I’ve had to summon any strength I could, to cheer her on, despite having tears lurking beneath the surface. And the fear of losing Chloe has been indescribable…
When you see your child, lying in a hospital bed, hooked up to monitors and having machines breathe for her, you wish you could demand answers.
I want to know why my baby was born with a heart defect. Is there something we could do to prevent this? Will there be a cure for my daughter?
Parents can have all the love in the world for their children but when they are sick, love isn’t enough. We need answers.
Your dedicated gift today could fund incredible research into the detection, treatment and cure of childhood heart diseases. Please give generously to help provide the answers families like mine so desperately need.
I’ve been told that each of us, whether a newborn baby or a full-grown adult, has a genetic sequence in our DNA that is made up of six billion pieces of code.
World-renowned researchers, Professor Sally Dunwoodie (pictured below) and Professor Richard Harvey at the Victor Chang Institute are on the hunt for the gene mutations responsible for childhood heart diseases like hypoplastic right heart syndrome (HRHS).
Thanks to advances in technology, the amazing ‘gene machine’ available to the Victor Chang Institute, can do a job that previously took 12 years, 350 times a week!
However, reading the code and finding the mutated genes is a huge job ahead of the professors. Supported by their teams they will:
- Obtain tiny skin biopsies from babies with HRHS and turn them into stem cells (don’t worry – it doesn’t hurt them!)
- Recreate a baby’s heart muscle cells from their stem cells
- Compare the genetic code between a child with HRHS and unaffected family members
- Research possible gene mutations to find out which has caused the defect
- Provide genetic counselling to families like ours, affected by HRHS
I wish I could find the cure myself. But I’m not a scientist. I am a mother of a beautiful little girl suffering from this life-threatening condition so all I can do is plead that you support the Victor Chang Institute and enable this vital work. Click here to donate.
Every single gift, that someone like you gives the Victor Chang Institute, gets researchers one step closer to finding a cure to childhood heart disease. For parents like me that would mean more than you could ever imagine.
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